Lisa, 24, raising a toddler with my husband and dealing with an auto immune disease.
The people in the cafeteria gave us extra cookies, dinner rolls and drinks. Boo yah.
What a crazy few days it’s been. Each day milo is getting better (yay) he’s eating and drinking more and isn’t in as much pain. We stopped the morphine and are only doing the codeine for night time. He’s making a lot if progress. We have to keep him on bed rest until we find out tomorrow if were going home. Do you know how hard it is to keep a toddler on bed rest? Almost impossible. We’ve watched Disney planes about 60 times since we’ve been here. Ooi.
How fun is this, his catheter actually has a crack in it in the tubing so it’s been leaking and it’s a bitch that we keep having to change dressings on it so it doesn’t get anywhere. Hopefully they won’t have to put a new one back in tomorrow.
Ugh Milo’s been in a lot of pain today, the meds don’t seem to be making too much of an impact. He’s at least calm now. We have to stay till Tuesday when he’s going to get put under again and see if the skin graft took well. Seriously everyone please keep my babe in your thoughts.